Tuesday, August 30, 2011

Atlanta Peachtree City child photographer announces Hayden and Angelman Syndrome Awareness

When my friend Deanna's little one was diagnosed with Angelman Syndrome, I have to admit that the first thing I did was open up google because I had never heard of it.


 Angelman Syndrome (AS) is a neuro-genetic disorder that occurs in 1 in 15,000 live births. AS is often misdiagnosed as cerebral palsy or autism.  In most cases, AS is not inherited.  A child is born missing a segment of their 15th chromosome on the maternal side.  Characteristics of AS include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman Syndrome will require life-long care.

Deanna took her love for running and then started to train in earnest to raise money for Angelman Syndrome awareness.  You can see her running, swimming, and biking her heart out all over town as she trains for races, wins, and donates all the profits to Angelman research.   She started the Miles for Smiles team to raise money for this cause -- no, not a cause -- she's raising money for Hayden, her sweet angel baby, and for other sweet angels.


Look at Hayden.  She radiates happiness and warmth and love.  Consider joining the Miles for Smiles team or supporting a Miles for Smiles athlete and help cure Angelman Syndrome.  

http://miles-for-smiles.org/index.php?option=com_content&view=article&id=48&Itemid=50









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